Connecting Fanconi Anemia Patients and Professionals across Europe

Welcome to FA Europe!

FA Europe is an initiative of Fanconi Hope in the UK and the Fanconi Anemie Werkgroep of the VOKK Nederland. It is an umbrella organisation connecting patient support groups, clinicians, scientists and FA patient representatives from across Europe, whose collective voice, reach and influence should be greater than that of the individual organisations. We want all European countries to have the opportunity to be involved in the management and running of the organisation.

  • Our Vision: Equal access to optimised care for people across Europe affected by Fanconi Anemia.
  • Our Mission: We aim to achieve this by connecting FA patients, doctors and scientists across Europe and acting as a facilitator for education and communication, fundraising, research collaboration and sharing of best practices and infrastructure.

Please help us to improve the lives of people living with Fanconi Anemia by making a donation to the FA Europe Network

European FA Virtual Tumor Advisory Board (EFA VTAB).

  • Need Expert Advice? If you are a healthcare professional treating a patient with FA who has a head or neck cancer SCC diagnosis and you would like expert advice.
  • Willing to share your expertise and become a member of the EFA VTAB?

Read more about the EFA VTAB – how to request advice and how to join the Board.

FA Europe Scientific Meeting 2025

Read about the FA Europe Scientific Meeting at the Gaslini Academy in Genoa 22/5 – 23/5 2025.

Latest News

Apply now: Fanconi Cancer Foundation Discovery Boost Grant

  The Fanconi Cancer Foundation (FCF) and the American Cancer Society (ACS) have partnered to launch the Fanconi Cancer Foundation Discovery Boost Grant, funding translational research on cancers associated with Fanconi anemia (FA).   What we’re looking for: Proposals must be translational in nature and directly applicable to FA-associated cancers, especially those linked to defects in the

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Countries with FA Support Groups

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